ERN-EuroBloodNet
 
Newsletter - December 2022
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
Sickle Cell Disease Patients Conversation Group With A Psychotherapist
 
 

The experience of the pilot had in Spain via the Patients Association ASAFE.

 
 
Read more
 
 
 
 
The ERN Preceptorship experience in The Cyprus Institute of Neurology and Genetics
 
 

Discover the experience of the coordinators and the participant!

 
 
Read more
 
 
 
 
Last uptade on RADeep
 
 

The first meeting of the Data Access Committee in Barcelona.

 
 
Read more
 
 
 
 
  
Discover SYNTHEMA!
 

The project aims to create a hub to develop and validate Artificial Intelligence techniques for anonymization and synthetic data generation in rare hematological diseases.

Read more
 
 
 
 
  
Discover how to get involved in Rare Disease Day 2023
 

Do not wait until the 28th February to participate. Do it right now!

Read more
 
 
 
 
  
Registration to the EURORDIS Black Pearl Awards is now open!
 

Take advantage of the early-bird prices until January 16.

Read more
 
 
 
 
  
The EHA2023 Hybrid Congress will be held next June!
 

Online registration will open in January 2023.

Read more
 
 
 
 
  
The RE(ACT) Congress & IRDiRC Conference
 

The event aims to bring together scientific leaders and experts and young scientists from various breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss rare diseases research policies.

Read more
 
 
 
 
  
"Natural History Studies addressing unmet needs in Rare Diseases" is the new EJP RD Joint Transnational Call 2023
 

The call has been launched last 12th of December 2022!

Read more
 
 
 
 
  
Attend to the EJP RD ERN Workshop: RARE TOGETHER!
 

The in-person event will take place on 8th – 9th  May 2023 at Van der Valk Hotel in Nijmegen-Lent, The Netherlands.

Read more
 
 
 
 
  
Participate in the EJP RD MOOC (Massive Open Online Course) "Introduction to Translational Research for Rare Disease"
 

Mentors and educators who are expert in translational research are currently active online until December 23 to answer your questions, comments and support you during the journey.

Read more
 
 
 
 
  
Happy Holidays and Happy New Year 2023!
 

May the peace and joy of the holidays be with you today and throughout the new year.

Read more
 
 
 
 
  
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

Read more
 
 
 
© ERN-EuroBloodNet 2024