Next 28th February 2023, the Rare Disease Day will be held around the world with the aim of raising global awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. For this reason, Rare Disease Day targets not only the general public but also policymakers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases. This action provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.
Rare Disease Day, which was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners, is the opportunity to advocate for rare diseases as a human rights priority at local, national and international levels as they work towards a more inclusive society.
The Rare Disease Day team has led to your disposition, material and handbooks you can use to build awareness by:
We invite you all to participate in 2023 Rare Disease Day from today until the 28th of February! Discover all the actions that will take place during the following months on the official website.
If you have any doubts about the available tools, do not hesitate to contact us to help you!