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Last uptade on RADeep

Last uptade on RADeep

Last uptade on RADeep

The first meeting of the Data Access Committee in Barcelona.

RADeep is a European patients registry on Rare Anaemia Disorders (RADs) collecting data from both new and already existing patients' registries across Europe and feeding into the European Rare Blood Disorders Platform (ENROL) the ERN-EuroBloodNet Registry. 

On Thursday 10th of November 2022, representatives from ten Member States (Belgium, Cyprus, Denmark, France, Germany, Greece, Italy, Portugal, Spain and Sweden) met in Barcelona for the first Data Access Committee (DAC) meeting of RADeep.

During this meeting, the DAC had the opportunity to discuss the Data Access Policy as well as guidelines on publications.

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