Keep informed about the latest information on Rare Hematological Diseases!

The manuscript is the first published joint project between ERN-EuroBloodNet and the European Hematology Association (EHA) Guidelines Committee.

ERN-EuroBloodNet in collaboration with the multidisciplinary team of Institut Curie dealing with PVRL patients, Denis Malaise, Ophthalmologist, Alexandre Matet, Ophthalmologist, Nathalie Cassoux, Ophthalmologist and Carole Soussain, Hematologist, has performed a study of the state of the art of management of PVRL across Europe.

The first hybrid edition of the EHA Congress will be held in Vienna from 9th to 17th June 2022.

On Rare Disease Day 2022, Prof. Bloom will take over their Instagram and Twitter accounts and post stories relating to EJP RD as well as the important advocacy work that she's engaged in.

The online event will take place over three days from on April 11th - 13th.

Both organizations will support the creation of an interoperable global data ecosystem for rare diseases to expedite the effective development of new therapies.

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