The manuscript with the results of the ERN-EuroBloodNet European Mapping of Diagnostic Procedures: Primary Central Nervous System Lymphomas has been published!
ERN-EuroBloodNet in collaboration with the multidisciplinary team of Institut Curie dealing with PVRL patients, Denis Malaise, Ophthalmologist, Alexandre Matet, Ophthalmologist, Nathalie Cassoux, Ophthalmologist and Carole Soussain, Hematologist, has performed a study of the state of the art of management of PVRL across Europe.
Intraocular lymphomas involved different types of lymphomas that could affect many parts of the eye. Primary vitreoretinal lymphoma (PVRL) is a complex disease. The common ophthalmologic examination but also more specific tests could provide a high clinical suspicion of PVRL, however, all of these tests are not available in all care centers and the choice of ones from others depends on the practice of hematologist, neurologist and ophthalmologist.
However, precise guidelines are still lacking, and daily practice differs from team to team. While some teams prefer local treatment only, other teams use systemic treatment and use intravitreal treatments only in case of specific situations. Even the definition of clinical response to treatment or relapse differs between specialists (hematologists, neurologists, ophthalmologists) and between teams.
Aiming to assess this identified gap, ERN-EuroBloodNet has promoted the creation of a European task force together with the multidisciplinary team of Institut Curie dealing with PVRL patients, Denis Malaise, Ophthalmologist, Alexandre Matet, Ophthalmologist, Nathalie Cassoux, Ophthalmologist and Carole Soussain, Hematologist to highlight the diagnostic and management challenges of primary vitreoretinal lymphoma (PVRL) through a review of the literature and a European survey on real-life practices for PVRL.
The results of the teamwork study have been recently published with the ERN-EuroBloodNet endorsement: “Primary vitreoretinal lymphoma: short review of the literature, results of a European survey and French guidelines of the LOC network for diagnosis, treatment and follow-up”. Congratulations to all!
The ERN-EuroBloodNet team is open to coordinating more actions for mapping Highly Specialised Procedures. We invite you to contact us for proposals!