ERN-EuroBloodNet
 
Newsletter - November 2025
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
Discover the highlights from the ERN-EuroBloodNet 7th Progress Meeting!
 
 

The online meeting of 6 November 2025 brought together the Members, Affiliated Partners and Patient Organisations to review progress and shape future actions in rare blood diseases.

 
 
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European Reference Networks - Monitoring report 2025
 
 

European Commission releases the first public monitoring report on ERN activity.

 
 
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Mar Mañú Pereira presented “Towards ethical AI in Rare Diseases: data quality and clinical validation for real equity” at the XXXI National Congress on Health Law in Madrid, Spain.
 
 

It is a key forum addressing one of today’s major challenges: Artificial Intelligence and the use of health data.

 
 
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ASH Abstracts are now available!
 

The 67th ASH Annual Meeting and Exposition will take place December 6-9, 2025, in Orlando, Florida, and online.

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ERDERA pre announces 2026 Call for Proposals on resolving unsolved rare diseases through variant validation and new technologies
 

The 2026 Joint Transnational Call will be launched on 10 December, with a free information webinar on 16 December

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2nd International Conference on Clinical Research Networks (CRN) for Rare Diseases
 

The 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by ERDERA in collaboration with Rare Disease International and IRDiRC, will take place in hybrid format from 9–10 December.

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Follow us on social media to stay up to date with the latest rare hematology news!
 

ERN-EuroBloodNet is now in Bluesky too, follow us!

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