Mar Mañú Pereira presented “Towards ethical AI in Rare Diseases: data quality and clinical validation for real equity” at the XXXI National Congress on Health Law in Madrid, Spain.
It is a key forum addressing one of today’s major challenges: Artificial Intelligence and the use of health data.
On 20 and 21 November, the XXXI National Congress on Health Law was held in Madrid, Spain, organised by the Spanish Association of Health Law (Asociación Española de Derecho Sanitario). Dr. María del Mar Mañú Pereira (Scientific Coordinator of the ERN-EuroBloodNet & ENROL and RADeep Coordinator) took the stage presenting "Towards ethical AI in Rare Diseases: data quality and clinical validation for real equity".
It is a key forum addressing one of today's major challenges: Artificial Intelligence and the use of health data. This year's Congress placed a strong emphasis on the objective of shared governance in healthcare, exploring how regulation, technology, and ethics must evolve together in a global and digital environment.
More than 700 professionals from the legal and healthcare sectors gathered to exchange a multidisciplinary and up-to-date vision on the present and future challenges of health law.
Key topics included:
- The European Health Data Space (EHDS) Regulation.
- Artificial Intelligence applied to healthcare professions.
- Neurorights.
- The upcoming Law on Medicines and Health Products.
