The Conference had representatives from the WHO, the EHA, ERN-EuroBloodNet, patient advocates, governmental authorities and healthcare professionals from the portuguese speaking countries.
Results on the ERN-EuroBloodNet EU mapping exercise conducted to evaluate the availability of this highly specialized procedure has been recently published in Pediatric Blood & Cancer journal.
"The European joint programme on rare diseases: building the rare diseases research ecosystem" delves into the collective achievements and ongoing efforts to foster a robust research environment for rare diseases.
ERN-EuroBloodNet ERN-EuroBloodNet Hôpital St Louis / Université Paris 7 1 avenue Claude Vellefaux 75475 PARIS, France
ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern
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