Outcomes of the ERN-EuroBloodNet meeting at the EHA Congress 2024
Discover more about the ERN-EuroBloodNet experience at the congress!
The EHA Hybrid Congress is the largest haematology event in Europe and took place in Madrid (Spain) from 13th to 16th of June 2024. The ERN-EuroBloodNet team was present at this major event with a special booth, in various oral & poster sessions and with the dedicated ERN-EuroBloodNet meeting.
During the EHA Congress, the ERN-EuroBloodNet meeting took place on 13 June 2024, focusing on "ERN-EuroBloodNet and ENROL Registry: Boosting data driven research and innovative therapies & fostering best practices and access to highly specialized care".
For this edition, the focus of the meeting was on the following:
1 Session: Data driven research & Innovative therapies; including ENROL registry and data driven research showcases in Sickle Cell Disease, Acute Myelogenous Leukemia and Thrombotic Thrombocytopenic Purpura as well as ERN-EuroBloodNet sponsored clinical trials, and
2 Session: Clinical Practice Guidelines & Access to Highly Specialized Care; including ongoing actions for the development of Clinical practice guidelines on Burkitt Lymphoma, Recommendations on Sickle Cell Disease, and patients pathways on Von Willebrand Disease, as well as EU mapping exercises for highly specialized procedures on Thrombosis in paediatrics and access to Paroxismal Nocturnal Hemoglobinuria tretaments.
Speakers of the meeting in the image above: Béatrice Gulbis (CUB-Hôpital Erasme), María del Mar Mañú-Pereira (Vall d'Hebron Barcelona Hospital Campus), Raffaella Colombatti (AO Padua), Matteo Giovanni Della Porta (IRCCS Istituto Clinico Humanitas - Rozzano), Chiara Zingaretti (Istituto Scientifico Romagnolo per lo Studio e la Cura dei Tumori, IRST), Flora Peyvandi (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Andreas Glenthøj (Copenhagen University Hospital - Rigshospitalet), Ralf-Dieter Hilgers (MTZ - Medizintechnisches Zentrum), Luca Malcovati (Foundation IRCCS Polyclinic San Matteo), Vincent Ribrag (Gustave Roussy Hospital), Mariangela Pellegrini (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis), Victoria Gutierrez Valle (Vall d'Hebron Barcelona Hospital Campus), Rubén Berrueco (Hospital de Sant Joan de Déu- Hospital de la Santa Creu i Sant Pau) and Pascale Burmester (Secretary of the PNH Global Alliance).
Interesting outcomes have been obtained from the discussions among the 88 attendants, from 45 ERN-EuroBloodNet Healthcare providers and 14 EU Member States. The most represented areas of expertise were red blood cell disorders (40,2%) and Bone marrow failures (15,6%). Discover all of them here!
Additionally, if you missed our social media updates on the day of the meeting, you can find highlights of all the speakers here!
During the four in-person days of the EHA2024 congress, the ERN-EuroBloodNet Coordination Team had the opportunity to present the current status of ERN-EuroBloodNet activities to the haematology community visiting the dedicated booth, to have fruitful discussions and to disseminate various ongoing actions & projects.
In the images above: Raquel Mosull del Campo (Vall d'Hebron Barcelona Hospital Campus), María del Mar Mañú-Pereira (Vall d'Hebron Barcelona Hospital Campus), Claire Diot (Vall d'Hebron Barcelona Hospital Campus), Sara Reidel (Vall d'Hebron Barcelona Hospital Campus), Maria de los Ángeles Rodríguez Sánchez (Vall d'Hebron Barcelona Hospital Campus), Mariangela Pellegrini (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis), Victoria Gutierrez Valle (Vall d'Hebron Barcelona Hospital Campus), Paola Bianchi (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Eleonore Marie Petras (University Hospital of Guadeloupe) and Maryse Etienne Julan (University Hospital of Guadeloupe).
Our Coordination Team also took the opportunity to meet face to face with ePAGs to strengthen the laison and teamwork with the ERN-EuroBloodNet, at the EHA Congress.
In the image above: Mariangela Pellegrini, ERN-EuroBloodNet Educational & Patients Program Manager, presenting during the meeting with the ePAGs.
We are deeply thankful to the ERN-EuroBloodNet community for their participation in our activities and to the EHA for allowing us to develop the meeting during the congress!
Last but not least, we are pleased to announce that the 6th ERN-EuroBloodNet Progress Meeting will take place on the 21st of November in Barcelona.