New publication of the European Joint Programme on Rare Diseases: Building the Rare Diseases Research Ecosystem
"The European joint programme on rare diseases: building the rare diseases research ecosystem" delves into the collective achievements and ongoing efforts to foster a robust research environment for rare diseases.
The European Joint Programme on Rare Diseases (EJP RD) represents a significant step forward in the rare diseases research ecosystem, integrating over 130 institutions from 35 countries. It focuses on streamlining the process from basic research to clinical application, fostering collaboration at an international scale, and emphasizing patient engagement.
EJP RD collaborates with various initiatives to optimize resource use and is evolving into the European Rare Diseases Research Alliance, aiming to accelerate diagnostics, develop innovative therapies, and assess the rare disease burden to inform policy decisions.
Titled "The European joint programme on rare diseases: building the rare diseases research ecosystem" this article published on the Rare Diseases and Orphan Drugs Journal delves into our collective achievements and ongoing efforts to foster a robust research environment for rare diseases.
Through collaborative projects, innovative research, and dedicated support for the rare disease community, we continue to make strides in understanding and addressing these unique health challenges.
Keywords
Rare diseases, research funding, virtual platform, capacity building, research acceleration, patients' empowerment, innovative methodologies, translational research.
Read the full article here.