This workshop will convene experts, patients, and stakeholders from across Europe to shape collaborative standards for the transition of rare disease care from pediatric to adult care.
A new multi-stakeholder survey, launched by the RealiseD project, invites the rare disease community to share insights and help improve clinical trial enrolment
ERN-EuroBloodNet ERN-EuroBloodNet Hôpital St Louis / Université Paris 7 1 avenue Claude Vellefaux 75475 PARIS, France
ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern
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