IRDiRC has recently launched a global call for experts

Submit by 20 February 2026 to join the dedicated Task Forces and Working Groups.

The International Rare Diseases Research Consortium (IRDiRC) has recently launched a global call for experts to support four new priority activities in rare disease research and care:

• Towards responsible and equitable implementation of Digital Twins in Rare Disease Research and Care - landscape and gap analysis.
• Models of Care for Care Coordination.
• Optimizing the Use of Data Sources and Registries.
• Improving the Adoption of Digital Biomarkers and Endpoints in Rare Diseases Therapeutic Development.​

They are seeking researchers, clinicians, data and digital experts, ethicists, regulators, industry representatives, and patient advocates with strong experience in rare diseases to join dedicated Task Forces and Working Groups.

IRDiRC calls for submissions up to 20 February 2026. Find out more about these calls and the application process on the IRDiRC website.

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