ERN-EuroBloodNet
 
Newsletter - October 2026
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
ERN-EuroBloodNet and RADeep put mental health at the centre of the Patient Sessions at ASCAT 2026
 
 

For the eighth consecutive year, ERN-EuroBloodNet, together with RADeep, coordinated special sessions for people living with sickle cell disease (SCD) at ASCAT, this year dedicated to mental health and quality of life.

 
 
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New publication in The Lancet Haematology: "Integrating sexual health into sickle cell disease care
 
 

Born from the ERN-EuroBloodNet and RADeep Patients’ Sessions at ASCAT 2025, where 27 patients from 13 countries discussed sexual health

 
 
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ERN-EuroBloodNet in Padua: two days of collaboration on networks and data
 
 

Co-Coordinator Dr María del Mar Mañú Pereira met representatives of 22 ERNs and spoke at the SYNTHEMA final event

 
 
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Registrations for the 2026 HLM4Rare High-Level Meeting are now open, and the draft program is available!
 

Register now for the High-Level Meeting in Brussels on 1-3 December

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RiseMPN 2026 – Can we engineer disease trajectories in MPNs?
 

The event will take place on 6-7 November 2026 at the Courtyard by Marriott Rome Central Park in Rome, Italy.

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Save the Date – EURORDIS Black Pearl Awards 2027
 

The EURORDIS Black Pearl Awards 2027 will take place on Monday, 15 February 2027, at the Cardo Hotel in Brussels.

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© ERN-EuroBloodNet 2026