Registrations for the 2026 HLM4Rare High-Level Meeting are now open, and the draft program is available!
Register now for the High-Level Meeting in Brussels on 1-3 December
The 2026 High-Level Meeting of the Health Leadership Mission for Rare Diseases will take place on 1-3 December 2026 at Concert Noble and the European Parliament in Brussels, Belgium.
This year, HLM4RARE has convened eight multi-stakeholder Working Groups to translate the Declaration's recommendations into concrete, evidence-based Plans of Action.
These plans will detail tangible actions and a roadmap for action from 2027 onwards. They will be launched and discussed at the next annual conference, which will take place in Brussels on 1-3 December 2026.
The conference will once again bring together political leaders, policymakers, European Reference Networks (ERNs), patients, clinicians, researchers and industry representatives from across Europe.
About HLM4Rare
The HLM4RARE project is anchored by the strategic leadership of European Reference Network (ERN) coordinators, who work in tandem with a robust, 360-degree support team. This multidisciplinary powerhouse provides a full spectrum of expertise, ensuring that clinical vision is seamlessly translated into operational reality.
This holistic approach allows HLM4RARE to navigate the complexities of international collaboration and digital innovation, ensuring every facet of the project, from stakeholder engagement to final implementation, is executed with precision and impact.
Find out more about the event on the HLM4Rare website!