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ERN-EuroBloodNet European Mapping of Transcranial Doppler for children with Sickle Cell Disease - Contribute until 22nd February!

ERN-EuroBloodNet European Mapping of Transcranial Doppler for children with Sickle Cell Disease - Contribute until 22nd February!

2021-02-08
ERN-EuroBloodNet European Mapping of Transcranial Doppler for children with Sickle Cell Disease - Contribute until 22nd February!

ERN-EuroBloodNet aims to evaluate the availability of Transcranial Doppler for children with Sickle Cell Disease, as a highly specialized procedure required for the adequate management of these patients.

In the frame of the Transversal Field of Action on Cross border health and as decided in the ERN-EuroBloodNet 3rd Board of Network meeting in BarcelonaERN-EuroBloodNet aims to evaluate the availability of Transcranial Doppler (TCD) for children with Sickle Cell Disease (SCD), as a highly specialized procedure required for the adequate management of these patients. 

Specifically, the results of this survey will shed light on the availability of TCD in Europe allowing the identification of issues related to the lack of access, lack of training for staff, lack of adequate protocols for implementation of TCD and treatment afterwards, etc, which could be addressed through dedicated actions in the network. 

This action is being coordinated by Raffaella Colombatti (AO Padua, Italy), Maddalena Casale (AOU - Second University - Naples, Italy), Daniela Cuzzubbo (Ospedale Pediatrico Meyer Firenze, Italy), Corrina McMahon (Children's Health Ireland, Ireland), Mariane de Montalembert (Assistance Publique-Hôpitaux de Paris, Hôpital Necker-Enfants Malades, France) and Vincenzo Voi (AOU S.Luigi Gonzaga, Italy).

We would really appreciate that you collaborate to this European mapping and forward it to your colleagues implicated in the management of pediatric patients with SCD, within or outside your center, it only will take you few minutes!

Contribute before 22nd February! https://forms.gle/MLwFzE2o6GvfXynFA