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Disease Registries

Four concrete Rare hematological diseases (RHD) areas has been identified for definition of Domain specific RHD Common Data Set (RHD-CDS) in line with ENROL dataset:

  1. Blastic plasmacytoid dendritic cell neoplasm (BPDCN): EU-BLAST
  2. Myelodysplastic Syndromes (MDS)
  3. Rare Anaemia Disorders (RAD): RADeep
  4. Bleeding and coagulation disorders: von Willebrand Disease: TWIST

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