Disease Registries

Five concrete Rare hematological diseases (RHD) areas have been identified for the definition of Domain-specific RHD Common Data Set (RHD-CDS) in line with ENROL dataset:

1. Blastic plasmacytoid dendritic cell neoplasm (BPDCN): EU-BLAST
2. Myelodysplastic Syndromes (MDS): HARMONY
3. Rare Anaemia Disorders (RAD): RADeep
4. Bleeding and coagulation disorders: von Willebrand Disease: TWIST

5. Acute Myeloid Leukaemia (AML): IMPACT-AML