ERN-EuroBloodNet, the ERN on Rare Hematological Diseases (RHDs)
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List of Clinical Practice Guidelines (CPG) and Clinical Decision Support Tools (CDST: clinical consensus statements or consensus recommendations), developed by the ERN-EuroBloodNet involving at least two Health Care Providers from two different Member States within the ERN. All of them include the acknowledgement of the ERN, for diseases within the scope of the ERN where no guidelines existed previously and be according to an evidence-based recognized methodology.

Publication Date Title Authors: ERN-EuroBloodNet Experts and their affiliations  Member States Involved
October 2018

Newborn screening for sickle cell disease in Europe: recommendations from a Pan-European Consensus Conference

 Stephan Lobitz (Gemeinschaftsklinikum Mittelrhein gGmbH), Paul Telfer ( Barts Health NHS Trust), Carolina Backman Johansson (Karolinska University Hospital), Catherine Badens (Assistance Publique-Hôpitaux de Marseille), Celeste Bento (Centro Hospitalar e Universitário de Coimbra, EPE), Marianne de Montalembert (Assistance Publique-Hôpitaux de Paris, Hôpital Necker-Enfants Malades), Béatrice Gulbis (CUB-Hôpital Erasme),  Baba Inusa (Guy's and St Thomas' NHS Foundation Trust), Marina Klenthous (Archbishop Makarios III Hospital), Joachim Kunz (Universitätsklinikum Heidelberg), Lisa Langabeer (Children's Health Ireland), Corrina McMahon (Children's Health Ireland), Laura Sainati (AO Padua), Raffaella Colombatti (AO Padua) Belgium, Cyprus, France, Germany, Ireland, Italy, Portugal, Sweden, The Netherlands and Switzerland
April 2022

International expert consensus recommendations for the diagnosis and treatment of Langerhans cell histiocytosis in adults

 Abdellatif Tazi (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis), Jan van Laar (Erasmus MC: University Medical Center Rotterdam), Polyzois Makras (251 Hellenic Air Force & VA General Hospital) and Michael Girschikofsky (Ordensklinikum Linz Elisabethinen) Austria, France, Greece and The Netherlands
April 2022

Appropriate management of polycythaemia vera with cytoreductive drug therapy: European LeukemiaNet 2021 recommendations

 Alessandro Vannuchi (AOU Careggi, Florence), Steffen Koschmieder (University Hospital RWTH Aachen), Heinz Gisslinger (Medical University of Vienna), Valerio De Stefano (Foundation polyclinic University A. Gemelli - Rome), Paola Guglielmelli (AOU Careggi, Florence), Francesca Palandri (IRCCS Azienda Ospedaliero-Universitaria di Bologna), Francesco Passamonti (ASST Sette Laghi - Ospedale di Circolo, Varese), Giovanni Barosi (Foundation IRCCS Polyclinic San Matteo, Pavia), Rüdiger Hehlmann (Universitätsklinikum Heidelberg), Jean-Jacques Kiladjian (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis) and Tiziano Barbui (Ospedale Papa Giovanni XXIII di Bergamo) Austria, Germany, Italy and Paris
May 2022 Hemochromatosis classification: update and recommendations by the BIOIRON Society

Domenico Girelli (AOUI Verona), Fabiana Busti (AOUI Verona), Martina U Muckenthaler (Universitätsklinikum Heidelberg) and Graça Porto (Centro Hospitalar do Porto, EPE)

 Germany, Italy and Portugal
June 2022

Recommendations for the management of COVID-19 in patients with haematological malignancies or haematopoietic cell transplantation, from the 2021 European Conference on Infections in Leukaemia (ECIL 9)

Simone Cesaro (AOUI Verona), Per Ljungman (Karolinska University Hospital), Fausto Baldanti (Foundation IRCCS Polyclinic San Matteo, Pavia), G, Herman Einsele (Universitätsklinikum Würzburg), Elie Azoulay (Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis) and Johan Maertens (University Hospital Leuven)

 Belgium, France, Germany, Italy and Sweden
       


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