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European Conference on Rare Diseases & Orphan Products (ECRD) will take place 15-16 May in Stockholm, shape the future for people living with a rare disease! 

European Conference on Rare Diseases & Orphan Products (ECRD) will take place 15-16 May in Stockholm, shape the future for people living with a rare disease! 

2019-11-25
European Conference on Rare Diseases & Orphan Products (ECRD) will take place 15-16 May in Stockholm, shape the future for people living with a rare disease! 

Be part of the global rare disease community at ECRD 2020. Submission of poster abstracts is available until 10th February!

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

ECRD 2020 will take place 15-16 May in Stockholm under the theme "The rare disease patient journey in 2030", recognizing that the next decade holds great potential for improvement and that while we cannot predict the future, we all have a role in preparing for it. As the EU shapes its future policy and spending frameworks, ECRD 2020 serves as an opportunity to press the 'pause button' and take the time to co-create policy options today that can lead to a better patient journey in 2030 and beyond.

Conference participants will hear from world experts on: future trends in diagnosis, rights to access healthcare and medicines, care delivery, digital health and the development, assessment and appraisal of therapies. The collaborative dialogue, learning and conversations that will take place during ECRD will form part of the groundwork to shape the national and international rare disease policies of the future.

ECRD 2020 Stockholm will put a spotlight on emerging trends in best practices, promising technologies and cutting-edge thinking across the six conference themes:

  • Theme 1: The future of diagnosis: new hopes, promises and challenges
  • Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion
  • Theme 3: Share, Care, Cure: Transforming care for rare diseases by 2030
  • Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development
  • Theme 5: Achieving the triple A's by 2030: Accessible, Available and Affordable Treatments for people living with a rare disease
  • Theme 6: The digital health revolution: hype vs. reality

You can already submit a poster abstract 10th February! 

Applications for the Patient Advocate Fellowship program is open until 2nd December!

Guidelines for submission, process for registration and full program is available at ECRD 2020 website

Be part of the global rare disease community at ECRD 2020 Stockholm and shape the future for people living with a rare disease! 


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