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The Conference on Global Globin 2020 Challenge Conference 2019 was held 28th-30th October at the UNESCO with the participation of several EuroBloodNet experts

The Conference on Global Globin 2020 Challenge Conference 2019 was held 28th-30th October at the UNESCO with the participation of several EuroBloodNet experts

2019-11-22
The Conference on Global Globin 2020 Challenge Conference 2019 was held 28th-30th October at the UNESCO with the participation of several EuroBloodNet experts

All abstracts of presentations will be published in the upcoming Hemoglobin Journal, including “EuroBloodNet: A European Reference Network for Rare Blood Diseases and a Model for Emulation”

The Conference on Global Globin 2020 Challenge Conference 2019 (GG2020 Conference 2019) was held 28th-30th October at the UNESCO, Paris, under the theme "Enhancing Partnership Towards Equitable Healthcare", focusing on a wide range of topics from variant detection to advanced human genomic data sharing.

The program included plenary lectures, symposia and poster presentations that provided the audience on the latest developments on hemoglobin/blood diseases especially Thalassemia and Sickle Cell Disease. Some of the invitated speakers were EuroBloodNet experts Celeste Bento, Antonio Piga, Patricia Aguilar-Martínez, Petros KountourisMarina Kleanthous and Serge Pissard and the ePAG representative for red blood cell disorders Angelo Lores Brunetta.

In addition, “EuroBloodNet: A European Reference Network for Rare Blood Diseases and a Model for Emulation” was presented detailing the five projects that are specifically addressed to Rare Anemias improving the European panorama of hemoglobinopathies from a clinical, epidemiological, political and educational point of view.

  1. Availability of NGS for rare anaemia disorders across EU
  2. European Network of SCD Patients' Organizations
  3. Training session for SCD patients
  4. Cross-Border collaboration agreements for Bone Marrow Transplantation as a model for cross border referral system.
  5. Preceptorships for health professional cases based in EuroBloodNet HCPs and coordinated by EuroBloodNet SCD experts.

All abstracts of presentations will be published in the upcoming Hemoglobin Journal.


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