Rare Disease Day 2020 will be held next 29th February as the greatest occassion of raising global awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. For this reason, Rare Disease Day targets not only the general public but also policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.
Take part in an interactive face paint social media campaign to raise awareness of rare diseases and show your support for the rare disease community!
Visit the Rare Disease Day website for further information on how to get involved !!