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SCD Patients Testimonies at UNESCO

(April 7-9, 2020)-Project was postponed because of COVID19 pandemic outbreak

ERN-EuroBloodNet has organized two patients session for the 4th Global Congress on Sickle Cell Disease that would haven taken place at UNESCO in Paris, on April 7-9, 2020. This congress would bring together medical experts and researchers experienced in Sickle Cell Disease from around the world. During the congress, two sessions would have been dedicated to patient testimony; they would have last 2 hours each, that is to say 4 presentations of patient testimony of 20 minutes each + 10 minutes of audience questions.

Project was blocked because of the pandemic outbreak.

Patients associations Involved in the action:

FMDT SOS Globi - Fédération nationale des associations de malades drépanocytaires et thalassémiques


Oscar Netherlands

Global Alliance of Sickle Cell Disease Organizations (GASCDO)

Solace Sickle Cell Support Group


Association Dorys

Euro Blood Net