Governance

The governance and coordination of EuroBloodNet will be continuously supported by the activities of two functional structures: the Board of the Network (BoN) and Scientific and Strategic Board (SSB). In addition, an Independent Advisory Board has been established for seeking advice on specific issues.

Board of the Network (BoN)

The Board of the Network (BoN) is the decision-making body. It is chaired by the ERN coordinator and composed of all member representatives and patient association representatives (ePAGs).

The main function of the BoN is to

• Guarantee the smooth running of EuroBloodNet, oversee development of services and assess their impact.
• Adopt the legal framework for collaboration with third parties, as European Infraestructures for Research, Industries…
• Develop funding strategies for long-term sustainability
• Elect coordinators of the two main hubs, the heads of sub-networks and the heads of fields of transversal actions, and approve the multi-annual work plan (MWP) developed by the Scientific and Strategic Board (SSB).

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Scientific and Strategic Board (SSB)

The Scientific and Strategic Board (SSB), composed of the coordination members, the heads of the five transversal fields of action (TFA), the heads of the six sub-networks, and patient association representatives (ePAGs). The SSB will meet in a face-to-face meeting twice a year.

Responsabilities:

• Define the multi-annual work plan (MWP) to ensure the achievement of EuroBloodNet objectives.
• Execute the BoN decisions and the operational implementation of the MWP.
• Assess the level of impact of outcomes.
• Ensure the outreach of results at the European and Member States levels.

Scientific and Strategic Board (SSB)

SSB Member	Role
Pierre Fenaux	EuroBloodNet Coordinator / Myeloid malignancies subnetwork coordinator
Béatrice Gulbis	EuroBloodNet Coordinator / RBC defects subnetwork coordinator / TFA Telemedicine coordinator of non oncological Hub
Maria del Mar Mañú Pereira	EuroBloodNet Scientific Director
Victoria Gutierrez Valle	EuroBloodNet IT and dissemination manager
Mariangela Pellegrini	EuroBloodNet manager
Andreas Engert	Lymphoid malignancies subnetwork coordinator / TFA Telemedicine coordinator of oncological hub
Catherine Thieblemont	Lymphoid malignancies subnetwork coordinator
Uwe Platzbecker	Myeloid malignancies subnetwork coordinator
Maria Domenica Cappellini	RBC defects subnetwork coordinator
Achille Iolascon	BMF and hematopoietic disorders subnetwork coordinator / TFA best practices coordinator of non oncological hub
Régis Peffault de Latour	BMF and hematopoietic disorders subnetwork coordinator
Michael Makris	Rare bleeding-coagulation disorders and related diseases subnetwork coordinator / EUHANET representative
Flora Peyvandi	Rare bleeding-coagulation disorders and related diseases subnetwork coordinator
Dorine Swinkels	Haemochromatosis and hereditary iron metabolism disorders subnetwork coordinator
Graça Porto	Haemochromatosis and hereditary iron metabolism disorders subnetwork coordinator
Jane Apperley	TFA Cross border health coordinator of oncological hub
Raffaella Colombatti	TFA Cross border health coordinator of non oncological hub
Luca Malcovati	TFA Best practices coordinator of oncological hub
Dominique Bron	TFA Continuing medical education coordinator of oncological hub
Patricia Aguilar Martinez	TFA Continuing medical education coordinator of non oncological hub
Matteo della Porta	TFA Clinical trials and research coordinator of oncological hub
Eduard J. van Beers	TFA Clinical trials and research coordinator of non oncological hub
Jan Geissler	ePAG - Leukemia / TFA Continuing medical education coordinator of ePAGs
Loris Brunetta	ePAG - Thalassaemia / TFA Clinical trials and research coordinator of ePAGs / RBC defects subnetwork coordinator
Sophie Wintrich	ePAG - MDS / TFA Telemedicine coordinator of ePAGs / Myeloid malignancies subnetwork coordinator
Amanda Bok	ePAG - Haemophilia / TFA Best practices coordinator of ePAGs / Rare bleeding-coagulation disorders and related diseases subnetwork coordinator
Ananda Plate	ePAG - Myeloma / TFA Cross border health coordinator of ePAGs
Maria Piggin	ePAG – PNH / BMF and hematopoietic disorders subnetwork coordinator
Pierre Aumont	ePAG - SILLC / Lymphoid malignancies subnetwork coordinator

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Independent Advisory Board

An Independent Advisory Board (IAB) has been established from the outset involving European scientific associations representatives and experts on legal and ethical issues, epidemiological surveillance, education and external quality assessment.

Independent Advisory Board

Barbara de la Salle	UK NEQAS General Haematology
Didi Jasmin	European School of Haematology
Amanda Neville	European Surveillance of congenital anomalies
Pilar Nicolás	Chair in Law and the Human Genome - University of the Basque Country
Carin Smand	European Hematology Association
Joan Lluis Vives Corrons	ENERCA coordinator / University of Barcelona - Josep Carreras Leukaemia Research Institute