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Governance

Coordination team

Governance of ERN-EuroBloodNet is based on three main governing bodies: the ERN Coordination, the Board of the Network (BoN), and the Scientific and Strategic Board (SSB).  They are continuously supported by the ERN-EuroBloodNet Stakeholders Group.

Pierre Fenaux

Pierre Fenaux

Coordinator

Oncological Hub Chair

AP-HP, Hôpital St. Louis, Paris

pierre.fenaux@aphp.fr

Béatrice Gulbis

Béatrice Gulbis

Co-coordinator

Non-oncological Hub Chair

Hôpital ERASME-CUB, LHUB-ULB, Brussels

Beatrice.Gulbis@erasme.ulb.ac.be

María del Mar Mañú Pereira

María del Mar Mañú Pereira

Scientific Director & ENROL Coordinator

University Hospital Vall d'Hebron

Vall d'Hebron Research Institute, Barcelona

mar.manu@vhir.org

Victoria Gutiérrez Valle

Victoria Gutiérrez Valle

Scientific Manager

University Hospital Vall d'Hebron

Vall d'Hebron Research Institute, Barcelona

victoria.gutierrez@vhir.org

Mariangela Pellegrini

Mariangela Pellegrini

Educational & Patients Program Manager

AP-HP

Hôpital St. Louis, Paris

mariangela.pellegrini@aphp.fr

Maria Rodríguez Sánchez

Maria Rodríguez Sánchez

ENROL Data Manager

University Hospital Vall d'Hebron

Vall d'Hebron Research Institute, Barcelona

maria.rodriguez.sanchez@vhir.org

Claire Diot

Claire Diot

ENROL Manager

University Hospital Vall d'Hebron

Vall d'Hebron Research Institute, Barcelona

claire.diot@vhir.org

Adeline Gladieux

Adeline Gladieux

Financial and Administrative Officer

AP-HP

Hôpital St. Louis, Paris

adeline.gladieux@aphp.fr

Giulio Sannasardo

Giulio Sannasardo

European Project Manager

AP-HP

Hôpital St. Louis, Paris

giulio.sannasardo@aphp.fr

Daiana Lopez

Dissemination Manager

University Hospital Vall d'Hebron

Vall d'Hebron Research Institute, Barcelona

maria.rodriguez.sanchez@vhir.org

ERN-EuroBloodNet is officially coordinated by AP-HP. Since its beginning 2017, the expanded Coordination team included three main medical/scientist hubs of coordination to ensure the deployment of the ERN strategic plan and the achievement of its results:

  • Assistance Publique - Hopitaux de Paris (AP-HP)
  • Université libre de Bruxelles (ULB/ERASME)
  • Vall d'Hebron University Hospital - Vall d'Hebron Research Institute (HUVH/VHIR)

Staff members conforming ERN-EuroBloodNet Coordination team are assigned to the different coordination hubs based on their main role and activities. The Coordination team is in charge of assuring the proper operational management of the network and the smooth functioning among the key players.

Board of the Network

The Board of the Network (BoN) is composed by all Members and Affiliated Partners representatives, and the ERN European Patients Advocacy Groups (ePAGs).

The BoN, as the decision-making body of the ERN, is responsible for:

  • Election / Renewal of chairs of the coordinators of the 6 subnetworks and the 5 transversal fields of action
  • Approval / renewal / withdrawal of ERN-EuroBloodNet members and the ePAGs, in collaboration with Eurordis.
  • Revision and approval of the multi-annual work plan developed by the SSB

All member representatives, as part of the BoN, have the obligation to:

  • Attend BoN meetings
  • Follow the rules of procedure established by the Board
  • Pursue the Network's goals, objectives, and procedures
  • Adhere to the Network's criteria for experts
  • Provide the relevant data and information to support monitoring and periodic evaluation.





Scientific and Strategic Board

The Scientific and Strategic Board (SSB) is composed by:

The main function of the SSB is to develop the MWP and oversee ERN-EuroBloodNet actions and assess their impact.

  • Defines the MWP
  • Ensures the achievement of ERN-EuroBloodNet objectives
  • Ensure a good balance in patient and clinical needs of ERN projects
  • Assess the level of impact of outcomes
  • Identify problems impacting the proper development of the MWP and inform the ERN Coordination to implement correcting measures
  • Coordinates and promotes ERN actions with the support of ERN coordination
  • Exploit and disseminate the outcomes in close collaboration of the ERN coordination


ERN-EuroBloodNet Stakeholders Group

The three governing bodies are assisted by the ERN-EuroBloodNet Stakeholders Group (SG):

The roles of the SG are:

  • Supports the ERN-EuroBloodNet governing bodies as Advisory Group on:
    • Needs, opportunities for synergies and potential overlappings on the actions gathered in the MWP
    • Concrete issues impacting the development of some action, e.g. scientific and research aspects, codifications for interoperability.
  • Contributes to increasing the outreach of the ERN-EuroBloodNet actions and outcomes among the medical and scientific community, patients' community and the public in general.

Euro Blood Net