News

2018-04-30

All the activites and results achieved during first year of ERN-EuroBloodNet implementation are gathered in its first annual report

2018-03-12

ERNs after first year of activity

2018-02-02

28 February 2018 will be the eleventh international Rare Disease Day coordinated by EURORDIS

2018-01-15

Stars of the rare disease community recognised for their efforts through the EURORDIS Black Pearl Awards.

2018-01-15

The umbrella for both new and already existing European patients’ registries in rare anaemias

2017-11-20

The 1st BoN meeting was successfully held last November 10th in Paris

2017-11-13

Check the new leaflet and flyer!

2017-09-12

The meeting was held in Brussels last 6th September

2017-06-29

Watch the new video on ERNs and discover the heart of the networks!

2017-06-27

A brief Scientific and Strategic Board meeting took place at EHA congress for presenting what was agreed during the ERNs CG meeting and next steps discussion

2017-06-16

Guideline contains 6 recommendations adapted to different and well defined coding situations.

2017-03-15

Share. Care. Cure.

2017-03-11

The first 24 ERNs were awarded by the EC at the Kick off meeting held in Vilnius 9th March