News | Eurobloodnet.eu

European Reference Networks one year anniversary

2018-03-12

ERNs after first year of activity

Rare Disease Day 2018 is approaching! Show your rare. Show you care.

2018-02-02

28 February 2018 will be the eleventh international Rare Disease Day coordinated by EURORDIS

Winners of the EURORDIS Black Pearl Awards 2018!

2018-01-15

Stars of the rare disease community recognised for their efforts through the EURORDIS Black Pearl Awards.

Rare Anaemias Disorders European Epidemiological Platform (RADeep)

2018-01-15

The umbrella for both new and already existing European patients’ registries in rare anaemias

ERN-EuroBloodNet 1st Board of the Network meeting!

2017-11-20

The 1st BoN meeting was successfully held last November 10th in Paris

ERN-EuroBloodNet Dissemination material is already available!

2017-11-13

Check the new leaflet and flyer!

ERN-EuroBloodNet 2nd Scientific and Strategic Board Meeting

2017-09-12

The meeting was held in Brussels last 6th September

New video on European Reference Networks: a ray of hope for patients with rare and complex diseases, their families and doctors

2017-06-29

Watch the new video on ERNs and discover the heart of the networks!

EuroBloodNet was present at the 2nd ERN Coordinators Group Meeting and at the EHA Annual Congress

2017-06-27

A brief Scientific and Strategic Board meeting took place at EHA congress for presenting what was agreed during the ERNs CG meeting and next steps discussion

The guideline document "Standard procedure and guide for the coding with Orphacodes" has been produced by RD-Action

2017-06-16

Guideline contains 6 recommendations adapted to different and well defined coding situations.

Watch the European Reference Networks video, flyer and brochure!

2017-03-15

Share. Care. Cure.

EuroBloodNet, the European Reference Network on Rare Hematological Diseases, awarded by the EC as one of the approved ERNs

2017-03-11

The first 24 ERNs were awarded by the EC at the Kick off meeting held in Vilnius 9th March