Methodological approach of EuroBloodNet has been shaped in accordance with ongoing EU activities to contribute to innovative, efficient and sustainable health systems and facilitate access to better and safer healthcare for EU citizens. Our efforts to improve the delivery of cross-border care to RHD patients will be undertaken in accordance with the Directive on Cross-Border Healthcare (2011/24/EU).
Five main Transversal Fields of action (TFA) has been established to implement annual work plan aiming to achieve EuroBloodNet goals. Each TFA is led by one oncological hub coordinador, one non-oncological hub coordinator and one European Patients Advocacy Group (ePAG) representative coordinator:
TFA on cross-border health aims to establish a referral system for patients and samples in order to ensure the same level of access to healthcare across Europe.
TFA on best practices aims to compile, create, and assess their implementation, alongside disseminating guidelines in RHD
TFA on CME aims to spread cutting-edge knowledge and facilitate continuous medical education in the field of RHD.
TFA on Tele-medicine aims to facilitate inter-professional consultation by sharing of expertise and safety exchange of clinical information.
TFA on Clinical Trials and Research aims to foster European cooperation for epidemiological surveillance, development of high specialized procedures for diagnosis, innovative treatments and research.
|Cross border health|
|Oncological||Jane Apperley||Imperial College Healthcare NHS Trust (ICHNT)|
|Non oncological||Raffaella Colombatti||Azienda Ospedaliera Università di Padova|
|ePAG||Ananda Plate||Myeloma Patients Europe|
|Oncological||Luca Malcovati||Fondazione IRCCS Policlinico San Matteo (Pavia)|
|Non oncological||Achille Iolascon||Azienda Ospedaliera Universitaria Federico II|
|ePAG||Amanda Bok||European Haemophilia Consortium (EHC)|
|Continuing medical education|
|Oncological||Dominique Bron||Institut Jules Bordet|
|Non oncological||Patricia Aguilar-Martinez||Montpellier University Hospital (CHU de Montpellier)|
|ePAG||Jan Geissler||Leukemia Patient Advocates Foundation|
|Oncological||Andreas Engert||University Hospital Cologne|
|Non oncological||Béatrice Gulbis||CUB-Hôpital Erasme|
|ePAG||Sophie Wintrich||MDS UK Patient Support Group (and MDS Alliance)|
|Clinical Trials and Research|
|Oncological||Matteo della Porta||IRCCS Humanitas Research Hospital (Milan)|
|Non oncological||Eduard J. van Beers||
University Medical Center Utrecht
|ePAG||Angelo Loris Brunetta||Thalassaemia International Federation - Associazione Ligure Thalassemici Onlus|