Topic on Focus on Sickle Cell Disease for Patients and their Families
ERN-EuroBloodNet Topic on Focus on Sickle Cell Disease (SCD) for patients and their families aims to disseminate very important topics related to SCD to the patient community and their families: the latest advances in treatment and diagnosis, improving the quality of life in the field of this rare red blood cell disease.
The 11 Topics of this program have been chosen by people living from SCD answering the ERN-EuroBloodNet Survey on Prioritization of Educational Needs.
PROGRAM
- A set of 11 webinars targeting patients and their families.
- 30/40 min of presentation and 15/20 minutes of questions from attendees
- European experts in the field will provide Webinars.
- Once per month, every Monday 5 pm - 6 pm (Paris CET).
- The following webinars will be held starting from January 2022 :
- New therapies for SCD
Date: 31thJanuary 2022
Speaker: Malika Benkerrou (AP-HP Hospital Saint-Louis, Paris)
- Adult Patients Quality of Life
Date: 14th February 2022
Speaker: Noémi Roy, (Oxford University Hospitals NHS Foundation Trust)
- Hydroxyurea and fertility
Date: 14th March 2022
Speaker: Mariane de Montalembert, (AP-HP Hospital Necker, Paris)
- Neurological Damages in SCD
Date: 4th April 2022
Speaker: Raffaella Colombatti, (AOU Padova)
- Neonatal Screening
Date: 9th May 2022
Speaker: Béatrice Gulbis, (ULB Hôpital Erasme, Bruxelles)
- Gestational Risk
Date: 6th June 2022
Speaker: Laure Joseph, (AP-HP Hospital Necker, Paris)
- SCD and immune disease
Date: 4th July
Speaker: Slimane Allali, (AP-HP Hospital Necker, Paris)
- Genetic Counselling
Date: 26th September 2022
Speaker: Celeste Bento, (Centro Hospitalar e Universitário de Coimbra, EPE)
- BMT: survival infertility and other complications
Date: 17th October
Speaker: Subarna Chakravorty, (King's College Hospital NHS Foundation Trust)
- Polyuria and Enuresis: kidney damages
Date: 14th November 2022
Speaker: David Rees, (King's College Hospital NHS Foundation Trust)
- Priapism
Date: 5th December 2022
Speaker: Rachel Kesse Adu, Guy's and St Thomas' NHS Foundation Trust
Upcoming webinars
This Webinar Program is now finished. Click on "Past Webinars" to download the presentations and find recorded sessions, or visit EuroBloodNet's EDU YouTube channel to find all the EuroBloodNet Webinars held and other related videos!