List of Clinical Practice Guidelines (CPG) and Clinical Decision Support Tools (CDST: clinical consensus statements or consensus recommendations), developed by the ERN-EuroBloodNet involving at least two Health Care Providers from two different Member States within the ERN, in 2023. All of them include the acknowledgement of the ERN, for diseases within the scope of the ERN where no guidelines existed previously and be according to an evidence-based recognized methodology.
| Publication Date | Title | Authors: ERN-EuroBloodNet Experts and their affiliations | Member States Involved |
|---|---|---|---|
| 2023 | International Guidelines for the Diagnosis and Management of Pyruvate Kinase Deficiency | Paola Bianchi (Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan) , Andreas Glenthøj (Copenhagen University Hospital-Rigshospitalet), Wilma Barcellini (Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan), Eduard J van Beers (University Medical Center Utrecht), Dagmar Pospíšilová (Palacky University and University Hospital Olomouc) , Richard van Wijk (University Medical Center Utrecht), Maria Del Mar Mañú Pereira (Hospital Universitari Vall d'Hebron, Barcelona, Spain) , Oliver Andres (University Hospital Würzburg) , Frédéric Galacteros (Henri Mondor Hospital) , | Italy, Spain, Germany, Netherlands, Czech Republic, France |
| Ongoing | Adult Burkitt Lymphoma | ||
| Ongoing | Vexas syndrome | ||
| Ongoing | Recommendations for Sickle cell disease | ||
| Ongoing | Patients journey for von Willebrand disease |
