The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients
The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients
08/05/2024 08:00
Speakers: Maria de los Angeles Rodríguez Sánchez
Target:
Health professionals
Subnetworks: Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies
Disease Groups: Transversal
DESCRIPTION
This webinar, designed to target Members and Affiliated partners experts*, will be focused on:
- New strategy for the collection of annual counts of rare hematological disease patients
- Presentation of the developed tool “ENROL Registry Module for the Collection of Annual Counts of RHDs Patients“
- Practical demonstration of the tool
- Information on the 2024 campaign, including information on the deadlines
Aiming to increase the expert's participation in this webinar, this topic will be presented in three different time slots:
- Thursday 2nd of May at 17 pm (CEST)
- Friday 3rd of May at 13 pm (CEST)
- Wednesday 8th of May at 8 am (CEST)
*Links for connection to this webinar will be sent exclusively to the target audience.