Do not let people bleed their way to treatment: accurately diagnosing VWD
Do not let people bleed their way to treatment: accurately diagnosing VWD
Speakers: Susie Shapiro, Jo Traunter, Georgia Korosidou
Dr. Susie Shapiro is a Consultant Haematologist and Associate Professor at Oxford University. She works entirely in the field of haemostasis and thrombosis: haemophilia and other bleeding disorders, thrombosis and anticoagulation. Her interest in VWD stems from her PhD at Imperial College London with Prof Mike Laffan, studying the structure-function relationships of VWF. She has particular interests in improving patient safety, with projects to optimise anticoagulation winning national awards; and in improving knowledge of aging and comorbidities in bleeding disorders including with respect to new innovative treatments. She is actively involved in clinical research trials, including many as local PI and national CI. Dr Shapiro is currently Head of Department for the Oxford Haemophilia and Thrombosis Service, National Speciality Advisor for Specialised Blood Disorders, and Co-Chair of the Scientific SubCommittee on FVIII, FIX and Rare Coagulation Disorders for the International Society of Thrombosis and Haemostasis.
Prof. Dr. Jo Traunter is an academic at the University of Hull in the UK, her research and teaching focuses on Education, Childhood and Youth Studies. Jo is a mother of three and was diagnosed with VWD at the age of 37, despite a long and complex history of bleeding episodes, two of her children have since also received a diagnosis of the condition.
Jo has worked for the VWD working group since its conception and has recently taken responsibility for co-chairing the recently rebranded VWD committee alongside Julia Rauscher. Jo additionally works as trustee for the UK Haemophilia society, sits on the UK VWD working group and chairs the UK HS Women's subcommittee and associated Talking Red events.
Jo has a passion for changing the lived experience of those with VWD, working to raise awareness of the condition and support and advocate for the VWD community. Believing that it is imperative that we raise awareness of VWD and campaign for effective treatment options and access to care for everyone affected by the disorder, wherever they may live in the world, Jo states.
Georgia Korosidou is a VWD patient type 2 and she is in the board of the Greek society almost 15 years now. She was diagnosed with VW at the age of 21. She has studied business administration and work as a lead business analyst for an IT company.