Emotional trauma

Speakers: Lotte Haverman, Jo Traunter, Tessa van Gastel

Dr. Lotte Haverman is a medical psychologist and associate professor at Amsterdam UMC. Her research focuses on the development, validation, and implementation of Patient-Reported Outcome Measures (PROMs) across various patient populations, integrating patient perspectives into clinical practice as well as medical trauma and new treatments. She has contributed significantly to psychosocial outcome assessments, including in hemophilia, where she evaluates PROMIS item banks to assess quality of life in patients. Dr. Haverman has also been involved in studies on sexual functioning in men and women with bleeding disorders, highlighting the broader psychosocial impact of the condition. By focusing on personalized care and patient empowerment, she is hoping to improve care for individuals with chronic conditions, ensuring that psychosocial aspects are integrated into medical treatment and decision-making.

Prof. Dr. Jo Traunter is an academic at the University of Hull in the UK, her research and teaching focuses on Education, Childhood and Youth Studies. Jo is a mother of three and was diagnosed with VWD at the age of 37, despite a long and complex history of bleeding episodes, two of her children have since also received a diagnosis of the condition.

Jo has worked for the VWD working group since its conception and has recently taken responsibility for co-chairing the recently rebranded VWD committee alongside Julia Rauscher. Jo additionally works as trustee for the UK Haemophilia society, sits on the UK VWD working group and chairs the UK HS Women's subcommittee and associated Talking Red events.

Jo has a passion for changing the lived experience of those with VWD, working to raise awareness of the condition and support and advocate for the VWD community. Believing that it is imperative that we raise awareness of VWD and campaign for effective treatment options and access to care for everyone affected by the disorder, wherever they may live in the world, Jo states.

Tessa van Gastel is a trained psychologist and a PhD student at the Research Department of Child- and Adolescent Psychiatry & Psychosocial Care in Emma Children's Hospital of the Academic Medical Center in Amsterdam. Tessa's research project focuses on sexual functioning in people with congenital bleeding disorders and uses both a qualitative and quantitative method. She will develop and validate PROMIS®-questionnaires that these questionnaires can be used to get insight in sexual functioning of this patient population and that can be used in clinical care.