Speakers: Edgar Jost, Pascale Burmester
Prof. Dr. Med. Edgar Jost, head of the unit for stem cell transplantation and cellular therapy, has a current position as associate professor in the Department of Haematology, Oncology, Haemostaseology and Stem Cell Transplantation (Med. Klinik IV), RWTH Aachen University Hospital, of the unit for Stem cell transplantation and cellular therapy. Specialist in internal medicine, haematology and oncology, his expert areas are: allogeneic and autologous stem cell transplantation, Cellular therapy, Acute myeloid leukaemia (AML), Haematological diagnostics and hematopoietic stem cell transplantation.
Pascale Olivia Burmester was born in 1971 in Germany and has a Master of Educational Science. She is a AA and PNH patient, transplanted in 2013 who has been supported since 2005 by co-founding a self-support forum. She is CEO of the German foundation "Stiftung Lichterzellen", where she provides patients and families with information, carries out multiple projects for patients and families and works as a patient advocate. As a member of the board of the PNH Global Alliance, she has a seat in the PNH Registry and she is specially engaged in the scientific development of a AA/PNH-specific Quality of Life questionnaire. Finally, she is involved in QoL-study projects.