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What effect does Aplastic Anemia and PNH have on my life?

What effect does Aplastic Anemia and PNH have on my life?

19/04/2023 17:30

Speakers: Jens Panse, Maria Piggin

Target: Patients
Subnetworks: Bone marrow failure
Disease Groups: Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)

Dr. Jens Panse is the Deputy Director of the Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation at the University Hospital RWTH Aachen, Aachen, Germany and the Managing Medical Director of the Center for Integrated Oncology (CIO), Aachen. He is a specialist in classical haematology, including Paroxysmal Nocturnal Haemoglobinuria, Aplastic Anaemia and other bone marrow failure syndromes with a special interest in quality of life aspects in patients with bone marrow failure syndromes.

Maria Piggin is a PNH patient who founded PNH Support in 2015. Maria is a European Patients' Academy of Therapeutic Innovation's (EUPATI) Fellow, a EuroBloodNet ePAG and chairs the PNH Global Alliance. Maria also works for the NIHR Imperial Patient Experience Research Centre within the School of Public Health at Imperial College, London supporting publicly funded researchers to involve patients and the public in their research.

Registration is closed for this webinar