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Understanding PNH

Understanding PNH

14/12/2022 17:30

Speakers: Flore Sicre de Fontbrune, Ulrike Göbel

Target: Patients
Subnetworks: Bone marrow failure
Disease Groups: Paroxysmal nocturnal hemoglobinuria

Prof. Flore Sicre de Fontbrune has a current position in the department of Adult Hematology Bone Marrow transplant at the AP-HP Hôpital Saint-Louis (Paris, France).

After finishing her M.Sc focused on Cellular Biology (AP-HP Hôpital Saint-Louis, Paris, France) and her M.D. in Clinical Hematology (Université Paris Descartes, Paris, France) had the opportunity to join the team of the Adult Hematology Unit at the AP-HP Hôpital Necker-Enfants Malades, Paris, France.

Ulrike Göbel has been an Aplastic Anemia and PNH patient since 1999. While fully recovered from AA, her PNH requires regular treatment. She is on early retirement and has a mini job.

Ulrike is the chair of Aplastische Anämie & PNH e.V., a German patient organisation that supports and connects AA and PNH patients, raises awareness and advocates the interests of patients