Understanding PNH

Speakers: Flore Sicre de Fontbrune, Ulrike Göbel

Prof. Flore Sicre de Fontbrune has a current position in the department of Adult Hematology Bone Marrow transplant at the AP-HP Hôpital Saint-Louis (Paris, France).

After finishing her M.Sc focused on Cellular Biology (AP-HP Hôpital Saint-Louis, Paris, France) and her M.D. in Clinical Hematology (Université Paris Descartes, Paris, France) had the opportunity to join the team of the Adult Hematology Unit at the AP-HP Hôpital Necker-Enfants Malades, Paris, France.

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Ulrike Göbel has been an Aplastic Anemia and PNH patient since 1999. While fully recovered from AA, her PNH requires regular treatment. She is on early retirement and has a mini job.

Ulrike is the chair of Aplastische Anämie & PNH e.V., a German patient organisation that supports and connects AA and PNH patients, raises awareness and advocates the interests of patients