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How to connect patients in Europe to CL experts via the ERN (Services available at national or European level, Virtual Board, CPMS)

How to connect patients in Europe to CL experts via the ERN (Services available at national or European level, Virtual Board, CPMS)

26/04/2021 17:00

Speakers: Martine Bagot, Pierre Aumont

Target: Patients organizations
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma

Martine Bagot, MD, PhD, is Professor of Dermatology and Head of the Department of Dermatology in Saint Louis Hospital, Paris University, Paris, France. Prof Bagot is leading a national reference center and network for cutaneous lymphomas, and is actively participating to international trials in the field. Prof Bagot has been board member of the European Society for Dermatological Research and is currently board member of International Society for Cutaneous Lymphoma.  She has been President of EORTC Cutaneous Lymphoma Task Force and of European Dermatology Forum. Prof Bagot is coauthor of 604 Publications referenced in Pubmed and of several international patents. She is Section Editor of the Journal of Investigative Dermatology.

Pierre Aumont was born in 1954 in Laon (France). He was active for 40 years in management positions in the energy industry and is now retired. Pierre was diagnosed as a CLL patient 10 years ago. He is still in a watch and wait phase. In 2015, he was designated as board member of SILLC (Association for Support and Information for CLL and Waldenström's Patients), the sole association providing information and support to the CLL patients in France. Within the board he is in charge of the international relations. In 2016 Pierre was elected as European patient advocate (ePAG), and is involved in the European network dealing with rare blood diseases (EuroBloodNet). In 2016 the umbrella network CLLAN was launched and Pierre was designated as vice-chairman of its Steering Committee.