Publications of ERN-EuroBloodNet Members and Affiliated Partners
The ERN-EuroBloodNet list of publications below includes Pubmed accredited publications acknowledging ERN-EuroBloodNed, that involve ERN Members and Affiliated partners in at least two Member States. If you are an ERN-EuroBloodNet Member or an Affiliated Partner and if you want to list your publication, please contact: coordination(ELIMINAR)@eurobloodnet.eu!
| Publication Date | Title | HCP: ERN-EuroBloodNet Members or Affiliated Partner | Member States Involved |
|---|---|---|---|
| February 2024 | Diagnosis and management of pyruvate kinase deficiency: international expert guidelines | Assistance Publique Hôpitaux de Paris- Hôpital Henri-Mondor; CUB-Hôpital Erasme; Foundation CNR Tuscany Region G. Monasterio; Foundation polyclinic University A. Gemelli - Rome; HUS Helsinki University Hospital- Hospital District of Helsinki and Uusimaa; Universitair Ziekenhuis Antwerpen; University Medical Center Utrecht. | France; Belgium; Italy; Finland; Netherlands. |
| March 2024 | Congenital fibrinogen disorders: a retrospective clinical and genetic analysis of the Prospective Rare Bleeding Disorders Database | Jules Bordet Institute; Riuniti hospitals Villa Sofia-Cervello - Palermo. | Belgium; Italy. |
| May 2024 | Clinical and Genomic-Based Decision Support System to Define the Optimal Timing of Allogeneic Hematopoietic Stem-Cell Transplantation in Patients With Myelodysplastic Syndromes | AOU Città della Salute e della Scienza di Torino; ASST Sette Laghi - Ospedale di Circolo- Varese; Rheinisches Hämoglobinopathie-Konsortium (Universitätsklinikum Düsseldorf); IRCCS Ospedale Pediatrico Bambino Gesù- Roma; Maria Sklodowska-Curie National Research Institute of Oncology; Mater Dei Hospital; Universitätsklinikum Heidelberg; Universitätsklinikum Würzburg. | Germany; Italy; Poland; Malta. |
| June 2024 | MOSAIC: An Artificial Intelligence-Based Framework for Multimodal Analysis, Classification, and Personalized Prognostic Assessment in Rare Cancers | AOU Città della Salute e della Scienza di Torino; ASST Sette Laghi - Ospedale di Circolo- Varese; IRCCS Ospedale Pediatrico Bambino Gesù- Roma; Universitätsklinikum Würzburg. | Italy; Germany. |
| July 2024 | Recommendations for diagnosis, treatment, and prevention of iron deficiency and iron deficiency anemia | AO Padua; AOU Modena; Archbishop Makarios III Hospital; Charité Universitätsmedizin Berlin; CHU de Pointe-à-Pitre/Abymes; Foundation polyclinic University A. Gemelli - Rome; Riuniti hospitals Villa Sofia-Cervello - Palermo; Universitätsklinikum Leipzig. | Italy; Cyprus; Germany; France. |
| July 2024 | Designing a single-arm phase 2 clinical trial of mitapivat for adult patients with erythrocyte membranopathies (SATISFY): a framework for interventional trials in rare anaemias - pilot study protocol | ASST Sette Laghi - Ospedale di Circolo- Varese; CUB-Hôpital Erasme; University Medical Center Utrecht. | Italy; Belgium; Netherlands. |
| October 2024 | Limited access to transcranial Doppler screening and stroke prevention for children with sickle cell disease in Europe: Results of a multinational EuroBloodNet survey | AORN A Cardarelli; AOU Careggi- Florence; AOU Siena; Assistance Publique Hôpitaux de Paris- Hôpital Necker-Enfants Malades; CHU de Lille; HUS Helsinki University Hospital- Hospital District of Helsinki and Uusimaa. | Italy; France; Finland. |
| December 2024 | Novel loci and biomedical consequences of iron homoeostasis variation | Academic Medical Center Amsterdam; Aghia Sophia Children's Hospital; Archbishop Makarios III Hospital; CUB-Hôpital Erasme; Riuniti hospitals Villa Sofia-Cervello - Palermo; University Medical Center Utrecht. | Netherlands; Greece; Cyprus; Belgium; Italy; Netherlands. |