ERN-EuroBloodNet Topic on Focus on Constitutional Thrombocytopenia is an accredited European online educational program targeting health professionals organized by the ERN-EuroBloodNet and in partnership with the CRPP (French Reference Center for Inherited Platelet Disorders) and the Filière MHEMO (French Constitutional Bleeding Disorders Network).
The program consists of a cycle of webinars focused on Constitutional Thrombocytopenia developed in collaboration with three experts, Prof. Marie-Christine Alessi and Dr. Paul Saultier from Assistance Publique-Hôpitaux de Marseille (member of the ERN) and Dr. Mathieu Fiore from CHU Bordeaux.
The main objective of this program is to disseminate up-to-date knowledge among interested haematologists, internists, paediatricians, or other healthcare providers to give visibility to cutting-edge advances in the field of Consitutional Thrombocytopenia. This group of rare diseases is characterized by thrombocytopenia associated with a variable bleeding tendency. Some of these diseases are also associated with a predisposition to developing serious additional illnesses (e.g. haematological malignancies, renal impairment, deafness, immune deficiency). There is a high need for education addressing pathophysiology and molecular basis, diagnosis, complications, and treatments of this group of disorders.
ERN-EuroBloodNet webinars are conducted using the Zoom Platform. It allows full audio and visual communication, as well as interaction between webinar's speaker and participants. Each Webinars will last one hour including speakers presentation and Questions & Answers session from the hearers. In addition, they are always held on the same day of the week and time slot: Wednesday at 5 pm (CET), once per month, from the 20th of September 2023 to 18th of December 2024.
The following topics will be covered:
Pathogenesis of inherited thrombocytopenia
Date: 20th of September 2023
Speaker: Hana Raslova
Suspecting inherited thrombocytopenia
Date: 11th of October 2023
Speaker: Maria Luisa Lozano
Blood smears combined with immunofluorescence facilitate diagnosis in patients suspected for inherited platelet disorders
Date: 15th of November 2023
Speaker: Andreas Greinacher
Constitutional thrombocytopenia related to GPIb-IX-V complex defects
Date: 31st of January 2024
Speaker: Anna Savoia
MYH9-related disease
Date: 7th February 2023
Speaker: Maria Luisa Lozano Almela and José Rivera Pozo
Thrombocytopenia due to transcription factor defects and leukemia predisposition
Date: 21st of February 2024
Speaker: Paul Saultier
Wiskott-Aldrich syndrome and X-linked thrombocytopenia
Date: 20th March 2024
Speaker: Coralie Mallebranche
Amegakaryocytic thrombocytopenia with or without skeletal abnormalities
Date: 22nd of March 2024
Speaker: Marlène Pasquet
Inherited thrombocytopenia: clinical cases (Part 1)
Date: 10th of April 2024
Speaker: Marie-Christine Alessi
Constitutional thrombocytopenia and bleeding risk
Date: 5th of June 2024
Speaker: Paolo Gresele
Benefits and limitations of high-throughput sequencing for the diagnosis of constitutional thrombocytopenia
Date: 3rd of July 2024
Speaker: Kathleen Freson
Constitutional thrombocytopenia: management of heavy menstrual bleeding
Date: 25th of September 2024
Speaker: Roseline D'Oiron
Constitutional thrombocytopenia: management of pregnancy
Date: 23rd of October 2024
Speaker: Remi Favier and Agnes Rigouzzo
Thrombocytopenia and Thrombocytopathy with a Focus on Hermansky-Pudlak Syndrome
Date: 6th of November 2024
Speaker: Barbara Zieger
Platelet transfusions and other hemostatic therapies in inherited thrombocytopenia
Date: 18th December 2024
Speaker: Andreas Greinacher and Carlo Zaninetti
Important! Webinars are recorded be publicly available through the ERN-EuroBloodNet website and social media channels. By joining the webinar you accept the possibility of being recorded and understand that will be publicly available on the website and social media channels. For more information, you can check the Privacy Policy.
This program is accredited with Continuing Medical Education Points provided by the European Board for Accreditation in Hematology (EBAH). Credits are assigned to the participants of a single session (1 credit) or to participants' of the full program (15 credits).
This Webinar Program is now finished. Click on "Past Webinars" to download the presentations and find recorded sessions, or visit EuroBloodNet's EDU YouTube channel to find all the EuroBloodNet Webinars held and other related videos!