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Disease Registries

Four concrete Rare hematological diseases (RHD) areas have been identified for the definition of Domain-specific RHD Common Data Set (RHD-CDS) in line with ENROL dataset:

  1. Blastic plasmacytoid dendritic cell neoplasm (BPDCN): EU-BLAST
  2. Rare Anaemia Disorders (RAD): RADeep
  3. Bleeding and coagulation disorders: von Willebrand Disease: TWIST
  4. Acute Myeloid Leukaemia (AML): IMPACT-AML

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