The Steering Committee is composed by:
- ENROL Consortium
- Domain disease experts
- ERN-EuroBloodNet Coordinators on research and guidelines working groups
- ePAGs (or other patients advocate if there is no ePAG)
- IT specialist
- Platform manager
Steering Committee main roles are:
- To define ENROL's general protocol
- To define research protocol and common & domain specific data set for RHDs respecting the principle of data minimization
- Establishing formal collaborations of ENROL
- Drafting ENROL Data Access Policy
- To establish the rules for peer-review publications
- Supervises the security and confidentiality of data held including data transmission