Due to the scarcity of patients and knowledge, rare diseases, affecting less than 1 in 2000 individuals, are the area in public health in which joint efforts among European Member States is most justified and crucial. The Directive 2011/24/EU on cross border health establishes the creation of European Reference Network (ERN) based on national recognized Centres of Expertise, aiming to tackle complex or rare diseases and conditions that require highly specialised treatment and a concentration of knowledge and resources.
The first 24 ERNs covering 24 different clinical areas were officially approved by the European Commission (EC) on December 2016 and started their activity 1st March 2017.
Do you want to know more about ERNs?
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