Subnetworks
ERN-EuroBloodNet disease coverage involves more than 450 RHDs according to ORPHA classification encompassing oncological and non-oncological diseases, including rare anemias, rare coagulation disorders, polycythemia, and myeloid and lymphoid tumors. Rare hereditary hemochromatosis was also included following a request from experts and patient groups, covering adulthood for oncological and childhood and adulthood for non-oncological RHD. Disease coverage is divided into 6 medical areas, so called subnetworks.
Subnetworks Coordinators
| Myeloid malignancies | See disease groups >> |
|---|---|
| Pierre Fenaux | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis |
| Uwe Platzbecker | Universitätsklinikum Carl Gustav Carus |
| Sophie Wintrich | ePAG - MDS UK Patient Support Group (and MDS Alliance) |
| Ananda Plate | ePAG - Myeloma Patients Europe |
| Jacqueline Dubow | ePAG - MDS Alliance (international) & Connaître et Combattre les Myélodisplasies (CCM) |
| Lymphoid malignancies | See disease groups >> |
| Andreas Engert | Universitätsklinikum Köln |
| Catherine Thieblemont | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis |
| Pierre Aumont | ePAG - Ensemble Leucémie Lymphomes Espoir (ELLyE) & Chronic Lymphocytic Leukemia Advocates Network (CLLAN) |
| Jan Geissler | ePAG - Leukemia Patient Advocates Foundation |
| Natacha Bolaños | ePAG - Lymphoma Coalition |
| Rare Red blood cell defects | See disease groups >> |
| Domenica Cappellini | Foundation IRCCS CA'Granda Ospedale Maggiore polyclinic - Milan |
| Béatrice Gulbis | CUB-Hôpital Erasme |
| Angelo Loris Brunetta | ePAG - Thalassaemia International Federation - Associazione Ligure Thalassemici Onlus |
| Bone marrow failure and hematopoietic disorders | See disease groups >> |
| Achille Iolascon | AOU Federico II - Naples |
| Régis Peffault de Latour | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis |
| Maria Piggin | ePAG - Paroxysmal nocturnal hemoglobinuria (PNH) support |
| Rare bleeding-coagulation disorders and related diseases | See disease groups >> |
| Flora Peyvandi | Foundation IRCCS CA'Granda Ospedale Maggiore polyclinic - Milan |
| Sophie Susen | CHU de Lille |
| Ioana Todorova-Yanakieva | ePAG - Bulgarian TTP Patient organization |
| Hemochromatosis and other rare genetic disorders of iron metabolism and heme synthesis | See disease groups >> |
| Domenico Girelli | AOUI di Verona |
| Dorine Swinkels | Radboud University Medical Center Nijmegen |
| Dag Erling Stakvik | ePAG - European Federation of Associations of Patients with Haemochromatosis (EFAPH) |