Methodological approach of EuroBloodNet has been shaped in accordance with ongoing EU activities to contribute to innovative, efficient and sustainable health systems and facilitate access to better and safer healthcare for EU citizens. Our efforts to improve the delivery of cross-border care to RHD patients will be undertaken in accordance with the Directive on Cross-Border Healthcare (2011/24/EU).
Five Transversal Field of Actions (TFAs) were defined aligned with the objectives defined in order to implement target driven actions to ensure their achievement:
TFA on cross-border health aims to establish a referral system for patients and samples in order to ensure the same level of access to healthcare across Europe.
TFA on best practices aims to compile, create, and assess their implementation, alongside disseminating guidelines in RHD
TFA on CME aims to spread cutting-edge knowledge and facilitate continuous medical education in the field of RHD.
TFA on Tele-medicine aims to facilitate inter-professional consultation by sharing of expertise and safety exchange of clinical information.
TFA on Clinical Trials and Research aims to foster European cooperation for epidemiological surveillance, development of high specialized procedures for diagnosis, innovative treatments and research.
Cross border health | ||
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Oncological | Pierre Fenaux | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis |
Non oncological | Raffaella Colombatti | Azienda Ospedaliera Università di Padova |
ePAG | Ananda Plate | Myeloma Patients Europe |
Best practices | ||
Oncological | Luca Malcovati | Fondazione IRCCS Policlinico San Matteo (Pavia) |
Non oncological | Paola Bianchi | Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan |
ePAG | Amanda Bok | European Haemophilia Consortium (EHC) |
Continuing medical education | ||
Oncological | Dominique Bron | Institut Jules Bordet |
Non oncological | Patricia Aguilar-Martinez | Montpellier University Hospital (CHU de Montpellier) |
ePAG | Jan Geissler | Leukemia Patient Advocates Foundation |
Tele-medicine | ||
Oncological | Adèle De Masson & Martine Bagot | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis |
Non oncological | Béatrice Gulbis | CUB-Hôpital Erasme |
ePAG | Sophie Wintrich | MDS UK Patient Support Group (and MDS Alliance) |
Clinical Trials and Research | ||
Oncological |
Clinical Trials: Pierre Fenaux Research & Registries: Matteo Della Porta |
Clinical Trials: Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis Research & Registries: IRCCS Humanitas Research Hospital (Milan) |
Non oncological |
Clinical Trials: Andreas Glenthoj Research & Registries: María del Mar Mañú Pereira |
Clinical Trials: Copenhagen University Hospital - Rigshospitalet Research & Registries: Hospital Universitari Vall d'Hebron |
ePAG | Angelo Loris Brunetta | Thalassaemia International Federation - Associazione Ligure Thalassemici Onlus |