Department name (English): Regional Reference Centre for inherited Bleeding Disorders
Department name (original): SSD Centro Hub Emofilia e MEC
Subnetworks of expertise:
Healthcare provider: Azienda Ospedaliero-Universitaria di Parma
Diseases covered by the department:
Department e-mail: centroemofilia(ELIMINAR)@ao.pr.it
Department phone number: +39 0521 703971
The Hub Centre for Hemophilia and inherited bleeding disorders takes care of congenital and acquired hemorrhagic diseases. More than 700 patients, adults and children coming also from other regions, are followed for diagnostic and therapeutic health services. The centre offers, from the suspicion until diagnosis and therapy of bleeding diseases, a global care thanks to a multidisciplinary team: hematologist, orthopedic, pediatrician, physiatrist and genetic counselling and diagnostics through a collaboration with other Departments of the Hospital (the molecular screening of Haemophilia A and B patients, genetic tests on suspected carriers and prenatal diagnosis, genetic analysis in patients with Factor VII and Factor XI congenital deficiency, von Willebrand disease are performed). Psychological support, when needed, is offered thanks to the Patient’s Association (AVES Onlus). The Centre has been identified as Regional Reference Centre of the “Hub & Spoke” Network of Inherited Bleeding Disorders of Emilia Romagna Region in 2002, with coordination and management role. The HC staff is composed by 4 haemotologists, 1 nurse , 1 molecular biologist and a study coordinator. The HC doctors are available on call 24/24h. The HC offers availability of hospitalization in specialistic departments in case of emergency and/or invasive and surgical procedures (pediatric, internal medicine, orthopedic, surgery, dentist surgery etc). The Parma HC coordinates national and international studies on IBD and participates at international network of the European Haemophilia Safety Surveillance (EUHASS project) since 2008. On February 2014 we obtained the Haemophilia Comprehensive Care Centre Certification by EUropean HAemophlia NETwork (EUHANET).