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ERN-EuroBloodNet will be presenting two posters at European Conference on Rare Diseases & Orphan Products (ECRD) 2020!

ERN-EuroBloodNet will be presenting two posters at European Conference on Rare Diseases & Orphan Products (ECRD) 2020!

2020-04-06
ERN-EuroBloodNet will be presenting two posters at European Conference on Rare Diseases & Orphan Products (ECRD) 2020!

“ENROL: The European Rare Blood Disorders Platform” and “ERN-EuroBloodNet: Establishment of the European Network of Sickle Cell Disease Patients Organizations” will be presented next 14-16 May

Two EuroBloodNet posters have been accepted by the Poster Committee for the 10th European Conference on Rare Diseases & Orphan Products 2020 to be presented online on 14-15 May 2020!

ENROL: The European Rare Blood Disorders Platform” will present the ENROL platform, conceived in the core of ERN-EuroBloodNet as an umbrella for both new and already existing registries on rare hematological disorders (RHD) aiming to maximize public benefit from data on RHD in agreement with EU regulations for cross-border sharing of personal data and promoting the standards for patient registries' interoperability.

ERN-EuroBloodNet: Establishment of the European Network of Sickle Cell Disease Patients Organizations” will present all the steps undertaken for the establishment of the European Network of Sickle Cell Disease (SCD) Patients Organizations whose objective is to give a strong representation of the disease and make its needs visible at European level.

See you next 14-15 May! Registration is available at ECRD Website!


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