We are glad to inform you that on the occassion of Rare Disease Day 2021, the Department of Rare Disease in Padova (Italy) has organized the Annual Convention on Rare Diseases, a 4 day event in which several conferences will take place with the participation of ERN-EuroBloodNet, highlighting:
On Thursday 25th from 10:30 to 12:00 "The transition from the childhood to adulthood" session, where Raffaella Colombatti (AO Padua) will present together with Michel Nkogne Gyslene and Wilhermina Lamptey, the Sickle Cell Disease patients and parents' patients Educational Session at Annual Scientific Conference on Sickle Cell and Thalassaemia (ASCAT)2020 (a joint project of ERN-EuroBloodNet, ASCAT and British Society of Haematology) in which they represented respectively the adults and the teenagers.
Moreover on Saturday 27th from 10:30 to 12:00 the “Family organizations and rare diseases – Round table discussion”, a patient's associations meeting with representatives of the Parliament, where Loris Brunetta (ERN-EuroBloodNet ePAG) will participate.
Find below the full agenda and all the information at the Stati Generali Sulle Malattie Rare Padova website.
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