The ERN-EuroBloodNet is happy to communicate that a first article has been published on the SCD Patients' Priorities Blog.
It talks about Chronicles of a Sicklecell & Thalassemic Patient and it is written by Décio Temporário, a Portuguese patient representative from APPDH Associação Portuguesa de Pais e Doentes com Hemoglobinopatias.
Enjoy the article! And comment on it if you want. You can read it here: https://sicklecellpatientpriorities.wordpress.com/2021/05/26/chronicles-of-a-sicklecell-thalassemic-patient/
We invite everyone with sickle cell disease to send us entries for the blog. We are especially interested in hearing whether you have managed to get the word out, or if you know of any projects that have arisen as a result of these priorities.
Discover how to contribute to the blog!