The ERN-EuroBloodNet is happy to share with you the two new articles published on the SCD Patients' Priorities Blog.
Both are written by Ms Miriam Santos Freire, a dedicated Portuguese patient representative from APPDH Associação Portuguesa de Pais e Doentes com Hemoglobinopatias.
Those articles explore very important topics, crucial for people living with Sickle Cell Disease. The first article signed by Ms Miriam Santos Freire analyses the added values of being a patient representative. And the second one shares valuable tips for people affected by Sickle Cell Disease wishing to travel.
Enjoy those articles and comment them if you want!
Finally, We invite everyone living with sickle cell disease to send us entries for the blog. Caregivers are very welcome too! We are especially interested in hearing whether you have managed to get the word out, or if you know of any projects that have arisen as a result of these priorities.
Discover how to contribute to the blog!