This year, two projects carried on in ERN-EuroBloodNet have been presented:
The study focused on the analysis of the mapping about the European use of Transcranial Doppler in Sickle Cell Disease paediatric patients have been presented orally by Raffaella Colombatti (AO Padua).
The contribution of 42 medical centres from 10 different European countries in the ERN-EuroBloodNet Collaborative Platform on Red Blood Cell and COVID-19 patients has made possible to gather a cohort of 373 patients. The first analysis of the data was presented in a poster together with a recorded talk provided by Pablo Velasco (Hospital Universitari Vall d'Hebron).
The presentation of the poster "ERN-EuroBloodNet European Registry of Patients Affected by Red Blood Cell Disorders and COVID-19" was very well received, with great interest in the large number of hemoglobinopathies collected, especially from thalassemic patients, since it is difficult to find a COVID-19 analysis with such a large number, thanks, especially to the Italian and Greek registries.
The audience had a special interest in risk factors for a more severe COVID-19, the effect of vaccination, changes in the description of COVID according to the evolution of the pandemic/waves.
The publication of these data will be of great public interest because it is a fairly exhaustive registry that solves some questions that large registries have not formulated, and therefore a European registry that includes several countries for which we know the number of patients with hemoglobinopathies that are controlled, thus allowing us to estimate the incidence of COVID-19 in our patients
In addition to the academic objective, the registry will remain open throughout the pandemic, since its main objective was to help clinicians stay updated on the characteristics of COVID-19 in RBC disorders through the dynamic graphs that are generated weekly.
Once again congratulations to everyone, especially to ERN-EuroBloodnet, for this magnificent initiative, and a happy and safe Christmas for everyone.
We are thankful for the collaboration of the ERN-EuroBloodNet community and particularly to the speakers that represented ERN-EuroBloodNet during the 63rd ASH Meeting!