DG SANTE is currently supporting ERNs on the development/adaptation of 2 new Clinical Practice Guidelines (CPGs) and 5 Clinical Decision Making Tools (CDMTs) per ERN. As first step, ERN-EuroBloodNet conducted a survey among members to identify The Top 10 list for CPGs and other CDMTs priorities development, from which the first topic elected was the creation of a Guideline on Adult Burkitt Lymphoma.
The process is taking off under the leadership of Dr. Vincent Ribrag (Institut Gustave Roussy, France) with the support of Dr. Luca Malcovati (as ERN-EuroBloodNet leader for the CPGs and CDMTs development) and the coordination team.
ERN-EuroBloodNet has promoted the creation of an Expert Panel focused on Burkitt Lymphoma:
Dr. Martine Chamuleau (Academic Medical Center Amsterdam), Prof. Dr. Dieter Hoelzer (University of Frankfurt), Prof. Dr. Charles Herbaux (CHU de Montpellier), Prof. Dr. Josep Maria Ribera (Germans Trias i Pujol), Prof. Dr. Jan Walewski (Maria Sklodowska-Curie National Research Institute of Oncology), Prof. Dr. Pier Luigi Zinzani (University of Bologna), Dr. Vincent Ribrag (Institut Gustav-Roussy), Judit Mészáros Jørgensen (Aarhus University Hospital), Dr. Clementine Sarkozy (Institut Gustav-Roussy).
Moreover, Natacha Bolaños (ERN-EuroBloodNet ePAG and representative of Lymphoma Coalition) is the patient representative actively involved in the development of such Recommendations from the beginning.
An online meeting was organized by ERN-EuroBloodNet team with the whole group last 19th January in order to overview the general initiative and this specific project as well as to illustrate the key steps.
Thank you so much for your fruitful collaboration!