Videos of ENROL Webinars for patients are now available!

You can watch the recordings of the educational sessions on ERN-EuroBloodNet EDU YouTube Channel or on our website.

ENROL WEBINARS is a European online educational program targeting patients organized by the ERN-EuroBloodNet in the framework of the ENROL, the European Rare Blood Disorders Platform.

The program, co-designed by ENROL's consortium, ERN-EuroBloodNet ePAGs and EURORDIS as part of the ENROL Steering Committee, consists of three Webinars focused on different aspects of the European Registries on Rare Haematological Disorders: a general overview on ENROL, its structuration, policy and adherence to European Rare Diseases, how this platform supports clinical research and finally the benefits of associating PROMs and PREMs to registries. 

• ENROL: Networking on European Registries in Rare Hematological Disorder

Speakers: Dr. María del Mar Mañú Pereira (ERN-EuroBloodNet Scientific Director & ENROL Coordinator, University Hospital Vall d'Hebron) and Loris Brunetta (Thalassaemia International Federation).

• How ENROL Supports Clinical Research

Speakers: Prof. Dr. Béatrice Gulbis (ERN-EuroBloodNet co-Coordinator, Hôpital ERASME-CUB, LHUB-ULB, Brussels) and Maria Piggin (PNH Support and PNH Global Alliance).

• PROMs and PREMs in ENROL

Speakers : Dr Mariangela Pellegrini (Educational & Patients Program Manager, Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis) and Jacqueline Dubow (MDS Alliance (international) & Connaître et Combattre les Myélodisplasies (CCM)).

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