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EJP RD survey on "Data Resources and Tools Knowledge Awareness

2024-08-09
EJP RD survey on

The survey aims to assess the knowledge of Rare Diseases research resources and tools, and evaluate the impact of the EJP RD on the research community.

The European Joint Programme on Rare Diseases (EJP RD) is thrilled to announce the launch of the survey aimed at assessing the knowledge and impact of Rare Diseases research (data) resources and tools provided by the European Joint Programme on Rare Diseases (EJP RD).

As a member of the Rare Diseases research community, your input is invaluable. This survey will help us understand how well we have addressed the gaps in rare diseases research and guide our future efforts in data processing and service provision.

Why Should You Participate?


·    Share your insights and challenges in the field of rare diseases research.
·    Influence the direction of EJP RD's resources and tools.
·    Contribute to the upcoming European Rare Diseases Research Alliance partnership.

Take the Survey Now! 

Together, let's advance the field of rare diseases research! 
 


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