The European Commission has published the report on Independent Evaluations of ERNs and Healthcare Providers!
This report showcases major achievements and areas for growth after the first 5 years of evaluation
The European Reference Network evaluation results report summarizes the results of a comprehensive evaluation of European Reference Networks (ERNs) and its members, five years after their creation, focusing on their role in addressing complex and rare conditions.
24 ERNs and 836 HCPs from 24 EU Member States and Norway participated in the evaluation. The evaluation included self-evaluations, document reviews, ERN interviews, on-site audits of members and stakeholder interviews.
This report, drawing on a wide range of data, increases the understanding of the essential role of the ERN system in addressing rare diseases and conditions across Europe.
It also presents relevant information on the structure, maturity, activity and impact of the ERN system, and identifies opportunities for improvement based on the findings of the stakeholder interviews and the evaluation to further enhance the evaluation process and ensure the continued sustainability of the ERN system.
